2020 SA Local Hero Emmah Money State: South Australia
Cystic fibrosis advocate
Cystic Fibrosis (CF) is the most common life-threatening hereditary illness in Australia, affecting the lungs and digestive system – and limiting average life expectancy to 37 years. Diagnosed with CF as a newborn, Emmah Money was given up for adoption, after doctors believed she wouldn't survive. Just before her 17th birthday, Emmah found her biological family by chance, who believed she had passed away. Now in her thirties and mother of two, Emmah has a list of credible achievements to her name. As an Ambassador for the Cure4CF Foundation, Emmah raises awareness and funds for Cystic Fibrosis, and won a three-year battle with the Australian Government to put the life-changing drug, Orkambi, on the Pharmaceutical Benefits Scheme. Through her social media platform, CF Mummy, Emmah has raised more than $50,000 to support research into a cure. Emmah regularly speaks in schools across Australia, inspiring students with her powerful account about overcoming obstacles, including bullying and depression, and living with an invisible disability.